inkyninja

an open letter to my MP on the NHS risk report

Below is the letter I wrote to my MP to try and persuade him to vote in favour of making the NHS risk report public this Wednesday.

You can write to your MP here https://secure.38degrees.org.uk/page/speakout/nhs-risk-reg-speak-out

It literally only takes a minute, if that’s all you have, as there is already a template letter written out when you click through. Please do.

I wrote a bit more for the entirely selfish reason of needing to get it off my chest.

#saveourNHS

——

Dear Simon Hughes,

Hi.

I don’t pretend to know much about politics. I didn’t even vote in the last election, so I suppose I can’t shout about how much I loathe the Tory party and their approach to managing this country.

I do know about the NHS though. In 2010 my mother was diagnosed with Myasthenia Gravis, and my father was diagnosed with bladder cancer.

After several months of free tests and an unfathomable number of free pills, my mother had a free operation that, within a day, meant she could smile, walk and chew her food again. She read about the operation on the internet, it wasn’t suggested to her by her doctor.

My father had free treatment that took toll on his body and spirit and, after being given the all clear last August, was still in a great deal of pain. We were told that type of cancer “rarely spreads so there is no need to do other tests”. But when he stopped eating and couldn’t get out of bed he was finally readmitted in November. 

Four days before he died the doctors told us the cancer had spread to his lungs, his liver and his kidneys as well as his bladder. They kept him as comfortable as possible using free drugs and drips and he slipped away in his sleep.

The nurses and consultants were so kind to my family in the last few days. Giving us as much time (and tea) as they could in a hospital so full of people. My mother was also given free advice from the bereavement office at the hospital. 

With the funeral costs I can’t imagine how we’d have managed with medical on top. 

The NHS isn’t perfect - the communication needs improving and people need to be seen as a whole, rather than just their individual symptoms or body parts - but it’s what we have and it’s what we need and without it my father could have died in pain, and my mother could still be partly paralyzed.

These are just two examples. My family has relied on the NHS time and time again throughout our lives. Please help us all; vote for the risk report to be released this Wednesday and help save our NHS. 

Thank you for reading this.

Kind regards.

Finally finished Jamrach’s Menagerie by Carol Birch. Brilliant writing. “I saw a tree dripping living colours that ran with kittenish joy into and out of one another all along their elegant branches, faces that flashed a million changes, questing eyes, water-dappled ceilings, a great lost city in ruins of pink and gold.”

I can’t wait for the “What happened to this weekened???!!! LOL” three page special.

I can’t wait for the “What happened to this weekened???!!! LOL” three page special.

(Source: teachingliteracy)

Sunset over Shinjuku (Taken with Instagram at Century Southern Tower Hotel)

Sunset over Shinjuku (Taken with Instagram at Century Southern Tower Hotel)

Boys, bullies and bright pink jeans

I’m opening up a bit so bear with me. I ramble.

Today I’m wearing hot pink jeans. They are bright, tight and unapologetic. Paired with my canary yellow bag I look a little like something that tumbled out of a sweet shop. It’s sunny, why not? Though I know when this delightful Indian summer we’re enjoying inevitably gets rained off, I can slip into my lime green mac and spin my pretty powder blue umbrella and dance through the puddles.

This may seem a rather pointless revelation but all this colour is a revelation to me. This is the first time I’ve worn the clothes that I actually wanted to since I was a child. The first time that I’ve felt I can wear an outfit that grabs attention rather than shies away from it. And that’s because I’m HAPPY.

I was bullied at school from the age of about eight through my teens by horrible boys and nasty girls and a general hoard of people that were “better” than me. They were trendy, they had their first drink as they fell out of the womb and their first sexual experience when they were 13 with their fit neighbour who we had never met because he was way cooler and way older and no you won’t know him actually because he doesn’t go to school around here because he’s way rich and super smart. Well. I can’t compete with THAT.

School bullying is something a lot of us have gone through. Mine was fairly mild compared to some stuff I’ve heard about. Name calling, rumour spreading, the occasional physical encounter… My earliest memory is when I was seven or eight and had a royal blue duffel coat with batwing-style sleeves (SO ahead of my time) which I naturally enjoyed flapping around the playground whilst pretending to be a bird. I loved it until one afternoon two girls launched out of their hiding places in the cloakroom to start yanking my arms up and down, spinning me into walls and chanting the very inventive “Blue chicken! Blue chicken!” until I slipped out of the coat and away.

One time my clothes and towel were taken from me when I was trying to change after swimming class. That was humiliating. AND cold. I was ten. Once my “scraggy” hair was pulled (and hard) moments before I was pushed down some stairs by a girl who seemed desperate to make my life a misery for several years. I sometimes see things on Facebook about her. Nothing about falling under a bus yet, but I remain hopeful.

The thing is when I remember being bullied, what springs to mind are times my clothes and hair were the subject of ridicule. This might seem shallow but at that age it was the very shell I lived in. So my reaction was to change it, and change it to something that my tormenters would approve of. Everything got shorter and more low cut. The colours got darker. It worked. New friends approved, I was popular with boys, my parent were disgusted – success! It may not have been me, but I was accepted, and wasn’t that enough?

This all backfired a few years later when I met a man who was also disgusted. He didn’t care what my friends thought and he certainly didn’t want me to be popular with boys. If something was low cut I was deemed a slut and an embarrassment. If something was bright I was told that I didn’t have the confidence to pull it off. Dresses weren’t appropriate for work. Weight gain would get me dumped. I also couldn’t wear heels as he couldn’t bear to look shorter than me. There was a consistent stream of negativity and screwed up faces about the way I looked.

My clothes became a cloak of invisibility. I didn’t want to be noticed. I didn’t want to be seen. I felt sick if I got wolf whistled or cat called and whatever I’d been wearing would be banished to the back of the wardrobe. Donning a new item of clothing was terrifying, and that was a dread that expanded until it took more and more confidence just to leave the house. I would cancel on appointments giving random excuses, and it was often just a wardrobe crisis on a severe scale. Everything I tried on made me feel anxious and ugly until panic took hold and I knew I couldn’t go out. People stopped inviting me to things, thinking me flaky. And fair enough.

I just want to say here that bullying on any level (even if it is JUST about your clothes) is unacceptable. If you are in a relationship, whether it’s with a partner, a friend, or family and you are being held back from being who you are or made to feel small or sad or SCARED you need to act. You stand up to them if it’s safe to, or you get help. When someone you trust asks you how you are you actually tell them. Please don’t hide away. You are allowing yourself to be swallowed whole by another person and this is your time and your world and your fucking right to be happy. So please please be happy.

Speaking of which, let’s get on to the pink jeaned happy ending shall we?

So I was brave one day and I left. And I made nice friends. Friends that liked me for me, who were there for me and drank to the demise of bad people and toasted the health of good people. Basically plenty of drinking went on. 

And I met a boy. A nice boy. A man really. Actually he’s quite old. Practically ancient (not really, darling). Since being with him my confidence levels have rocketed and it’s no coincidence. 

It didn’t happen overnight. The poor man was left rather flustered at times when an innocent comment about my outfit would reduce me to a wretched heap at the bottom of my newly-emptied wardrobe. But he is built of love and patience and kindness. And he has allowed me to become happy in myself. And now I just want to become someone he deserves (I’m still working on that).

Saying all this, girls, you don’t need a man to make you happy. But the way things were, I needed someone to help me get there. I’m so glad it was him.

Right. Enough sappiness.

Anyway. Now I wear bright things because they make me feel good and this weekend, for a change, I went a bit blonde. When I told my mother she said “God Jennifer, are you having some sort of identity crisis?”. And I had a little wobble about what other people might think.

And then I decided no, actually, I’m not having an identity crisis. I’m having an identity fucking parade.

Book sculpture

A very beautiful way to send a message.

I can’t begin to imagine how to fathom how to understand how many painstaking hours it takes to create one of these. At least three. And a half.

Maybe more.

Stunning.

Below, two examples of the anonymous and incredible gifts scattered around Edinburgh in March this year.

Mysterious paper sculptures

Read more here: http://community.thisiscentralstation.com/_Mysterious-paper-sculptures/blog/4991767/126249.html

Sculptures by Sue Blackwell.

See more here http://www.sublackwell.co.uk/portfolio-book-cut-sculpture/

Art by Georgia Russell.

                             memorire_2001-2

Read more here: http://homevoyeurs.com/2009/11/08/georgia-russell-book-art/

Oliver Jeffers illustrations

One of my favourite illustrators. I love his use of shadow.

Also a bit confused to find out he’s quite young and handsome, proving I imagine most illustrators to be old and pale with gnarled hands from staying indoors, bent over notebooks turning their heads inside out.

http://www.oliverjeffers.com/